Tag Archives for " genetic disorder "

Increased understanding – Kabuki Syndrome, Spina Bifida & SLD – aged 13 years

“She now has a willingness to have a go”  The program has opened a window to us when we had no windows open. The small part we have covered is just a beginning. We just needed to know what to work on.” Mum’s list… Just a few of the changes in our daughter: • She has […]

Communication increases social interaction – Kabuki Syndrome, SLD and Spina Bifida – aged 13 years

‘The main thing is the mixing with her peers now, not aggravating them. She knows how to mix and has good attention. She is a real comedian and likes a good giggle.’ – Mum Just a few of the changes since Brainchild: • Speech and communication has got better. • At the annual review at school, […]

9 year old with a Genetic Disorder, Noonan Syndrome

I’ve a house full of children and S is really blooming (this time last year all he could do was scream). Hi, I thought you would be interested in my list ‘what we can do because of Viv’: • I understand S a lot more. • He and I really enjoy the nightly tactile routine. […]

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