Major changes – Classic autism with Complex Learning Difficulties – aged 11 years

“There’s not much that hasn’t improved! Everything is better. There is so much it’s hard to know where to start.” – says Mum

“He has changed loads!” (Spontaneous quote from his twin sister)

Their message…….

“The BrainChild Program – Do it. Absolutely.
The whole family will get something from it”

So, how has he changed? Mum tells us about her son, aged 11 years and the changes since starting the Brainchild program. In her own words……

Communication

His communication was barely functional. He would say one word if he wanted food for example. Now he will tell/ask you to get it and where it is and says come here etc. His communication is now two way. It is basic conversation. For example, in the car he turns to friends of his sister and engages them in conversation about things that are going past. He talks as we drive, commenting on everything such as mum driving, turning the steering wheel, right, left…. And all he can see outside, the blossom on the trees….. and so on. Previously, anything outside of his own little bubble was not noticed. His communication was barely functional.

He is keen to communicate. He has much more language. There is much less echolalia. He is using phrases including ‘mine’ and showing the concept of ownership.
His concentrated listening is more than we could have hoped. He follows instructions calmly and easily.

Co-Operation

Cooperation has increased- he can now willingly follow instructions. He just accepts an explanation if we are going somewhere or doing something. His understanding of time and reduction in anxiety means that the sequence of when he can understand what is happening is stretched out to a week. He now knows the days of the week. He can see what’s coming in more detail. So he’s calm about it. Things are making sense to him. He no longer refuses to go to places he would refuse before. We no longer have him throwing himself down, or running away.

Visual prompts are still used and copying actions is really good. He loves rhymes and singing and makes them up, with actions. He is talking all the time, singing and happy.

Abstract reasoning skills were very poor. They are so much better that he negotiates. It’s not just a yes or no, he will give an alternative, not scream and shout as he used to.
There is no elective mutism anymore. He used to have a freeze reaction-this has stopped.
So many things are much better or gone. He needs to control less, he is more focused and is much easier to be with. He is just able to do more things more easily.

Self organisation

This has improved hugely. He dresses himself. He goes and puts on his pyjamas on his own. He will go and get his uniform if he is sent for it. He does not need much prompting now. He can put on his shoes. He makes his own sandwiches and toast, get drinks, and collects cutlery. If he is told to turn things off, or collect things to go out, for example, he can do it. He rarely daydreams now and his attention is more focused. He is not hyperactive. Nor does he stare blankly, or have dizzy behaviour. He is less forgetful and perseveres with each task. He is more interested in everything.

His concentration was like a goldfish –it has vastly improved. He couldn’t do anything that required concentration. This is a huge change.

Social Skills

Socially he wants to involve his parents and sister in play. He directs the play. He just used to have repetitive patterns that did not involve others. People have noticed a dramatic difference socially. He plays cooperatively with his sister and doesn’t hurt her on the trampoline as he used to. He now craves attention in a good way involving his dad/sister/mum in play.
He is affectionate now, doesn’t push us away. No temper tantrums now. Just a little controlling behaviour. He helps other children more. Even though he was bitten by one child he just said OW! And carried on.

Nothing is anywhere as bad as it used to be. He will try anything and is not anxious or frightened. We can challenge him more now, because he won’t over-react. We are amazed at what he will and can do.

Last summer before starting BrainChild he wouldn’t get out of the car if it was a new place. Not now. We can take him to shops, swimming pools, sport centres, almost anywhere. The BrainChild Programme has helped him to take part in all the other events and go swimming. He is far more relaxed. We can’t remember when he last refused to get out of the car. He has stopped hiding under the hood of his sweatshirts and rarely puts his hands over his ears. Before BrainChild these were common.

Fears

He no longer has a fear of water. He will go in the bath, loves the swimming pool and will do daring things with water. He will try anything new and even did water walking in a big ball across the pool! He is chilled!
His anxiety is better. He used to be violent often banging his chin with his hand. This happens very little now, just before school. Only school makes him anxious. He does not seem to be challenged – just contained. He is not obsessive now.

Dad was honest when he said: “We were hoping for any improvement at all. But I didn’t think it would make a difference. It’s made a massive difference.”

His behaviour is no longer disorientated, fears have gone, emotions are calmer, his whole demeanour is calmer. He will let mum know if he is not happy. He no longer seems to feel trapped. Flapping and hitting his chin is rare.
Some days he used to be anxious all the time. No longer a problem.
His dislike of changes and slow adaptation to new conditions was a severe problem. This is no longer a problem.
He accepts change. He is now more independent and safely so.
He can choose now. He can make decisions, is less confused. Speed of processing has improved. There is no elective mutism anymore. He used to have a freeze reaction – this has stopped.
No temper tantrums now. Just a little controlling behaviour. He will try a wider range of foods, now some veg and fruit and still likes cake in all its forms!
Creativity and flexibility has improved. He can now play and use objects to represent other things. He is happy to mix the toys from different sets which was terribly difficult for him earlier.
He is more patient. He waited quietly for the trains. He would’ve thrown a fit before.
He doesn’t just have an immediate reaction and scream. He can look and reason and work things out. His problem-solving is really good. He observes a problem and solves it. He is calm and accepts things. His dislike of changes and slow adaptation to new conditions was a severe problem. This is no longer a problem. He is keen to try new foods-this is complicated different to before BrainChild. He accepts change. He is now more independent and safely so. So many things are much better or gone. He needs to control less, aggression is less, he is more adaptable, and is much easier to be with. He is just able to do more things more easily. He is far happier!! There was no expression of learned information. Now he is speaking about things all the time and making observations. He is aware of things outside his own little space. Eye contact is better.
He is now trying to read signs and information around him. He spells out words. We have adapted our approach as he has changed. School haven’t . For example….they do not teach reading. He’s ready now. He wants to read….

He is sleeping much longer at night, which is great for everyone.!

Read more in the Brainchild Evaluation of Impact Report

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